At Matt Man's 3 year check up, his new pediatrician verified our secret growing fear that something was very wrong. The next couple years were a whirlwind of referrals to specialists and various therapists as well as several hospital visits for further medical testing (CGH microarray, growth hormone workup, brain MRIs, video EEG, echocardiogram, and more labs than I could possibly remember). Life as we had known it changed forever.
He has been in school and/or therapy full-time since the age of 3, working harder than any little boy should ever have to work at his age to learn things that are second nature to most kids.
Matt Man continues to have a growing list of medical and developmental diagnoses: Autism, 15q24 microdeletion syndrome, WITKOS, growth hormone deficiency syndrome, hypotonia, sensory processing disorder, anxiety, speech and language delays, gross motor delays, fine motor delays, intellectual disability, and the much more "normal" diagnosis of asthma.
Despite all of the medical jargon "defining" Matt Man, he is so much more. He is a hilarious, affectionate little boy with a lot of personality and a great love for music, bike riding, and Daniel Tiger. While we do share a lot of Matt Man's challenges on this blog and continually pray for God's healing in his life, we will forever feel blessed and thankful that he is OUR little boy. We wouldn't trade him for the world.
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| Matt Man, Easter 2015 |
