Our son, Matthew, has autism and 15q24 microdeletion syndrome (WITKOS subset). This is just a place to put down some of our thoughts on this journey.
Tuesday, July 17, 2012
Difficult Encounter
Today was a very difficult day for me, but not for the usual reasons. I work as a pediatric physician assistant and part of my job is monitoring normal growth and development. I met a child a little younger than Matt-man with many classic signs of autism today. Usually when parents share concerns about autistic-like behaviors with me, they've already seriously entertained autism as a possibility and are almost expecting the referral to get a further workup. This family was different. They had no idea that this was a real possibility. The "A" word had briefly entered their thoughts, but never seriously. They were in for a routine sick visit and mentioned some of his unusual behaviors as an afterthought. After a very long discussion and more probing I had few doubts that their child was probably on the spectrum, and I really didn't want to tell them. I remember keenly the feelings of shock and grief that I had experienced when first going through the diagnostic process with Matthew and those feelings resurfaced today when I looked into their eyes. I teared up along with them as we discussed the long medical and educational diagnostic / therapeutic process that awaited them. They have such a beautiful intelligent child with such a long difficult road ahead - just like our little Matt-man. I have prayed for them a lot this evening - that God will give them peace and strength through this all.
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